Shipping around Red Tape
2026 | 6 months long
Collaboration With:
The project would have been abandoned entirely when the collaborative partner (Visual Snow Initiative) flagged HIPAA concerns, meaning I would have spent hundreds on a compliant infrastructure that wasn't actually necessary for the data being collected.
Further research revealed language related constraints that brought new concerns that could change the project scope and introduce bias to the results
SOLUTION
Navigating Around Compliance Barriers
After paying $140 for Jotform Gold, the data collection process became more complex and less streamlined.
This prompted me to research regulatory requirements where I realised I could restructure my approach to meet compliance and forgo the expensive infrastructure and further project delays
Removing Bias in Result
Interviews with foreign individuals with the condition revealed the language constraints.
The resource designed to give you your best colour backdrop for your vision, based on timed readings and questions.
Non-native speakers will have skewed results due to processing delays, translation barriers (words that cannot be translated directly) and other cultural factors (reading directions)
IMPACT
Researched HIPAA's Protected Health Information requirements, identified that anonymous data collection without age/name/email wouldn't trigger compliance, and restructured the entire data collection approach to avoid regulatory overhead.
To implement this I communicated with those in the industry and the institutional partners to ensure my changes and matched industry and company standards.
Added age - gating and explicit consent language to stay compliant without expensive HIPAA infrastructure.
To mitigate this I rebuilt the resource 4 times, in the most popular languages, ensuring each piece of text was simple and identical in length
